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Improving Access to and Equity of Care for People with Serious Illness: A Workshop

April 4, 2019 @ 8:00 am - 5:30 pm

The workshop will feature invited presentations and panel discussions on topics that may include:

  • Barriers that impede access to care for serious illness (e.g., advance care planning, palliative care, and hospice) among vulnerable populations and strategies to address those barriers 
  • Strategies to build trust and effectively engage patients, families, and caregivers in diverse cultural, ethnic, racial and socioeconomic environments, in order to communicate with patients and families in a culturally competent manner regarding expectations and values related to end-of-life care, and to ensure that treatment is aligned with preferences
  • Approaches to enhancing the diversity of the workforce providing care to people with serious illness
  • Models of care delivery that currently serve vulnerable populations with serious illness, including public-private partnerships and community-level interventions such as use of community health coaches for peer-to-peer interventions, and partnering with faith-based organizations
  • Research gaps and key questions for further research

While the workshop is not open to the public, you can follow the conversation on twitter:  #SeriousIllnessCareNASEM


  Session 4, 

2:45 pm

A Policy Agenda to Improve Access to Care and Achieve Health Equity for People with Serious Illness

Moderator: Sarah Downer, JD, Associate Director, Whole Person Care and Clinical Instructor on Law, Health Law and Policy Clinic, Harvard Law School


  • Diane Rowland, ScD, Executive Vice President, The Henry J. Kaiser Family Foundation
  • Andy Slavitt, MBA, Founder and General Partner, Town Hall Ventures, Former Acting Administrator, Centers for Medicare and Medicaid Services
  • Lori Bishop, MHA, BSN, RN, CHPN, Vice President of Palliative and Advanced Care, National Hospice and Palliative Care Organization


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